Carin Alliance
By Dr. Nick van Terheyden aka Dr. Nick
Twitter: @drnic1
Host of Dr. Nick: The Incrementalist – #TheIncrementalist
On this episode I talked to Ryan Howells, Principal at Leavitt Partners and a Healthcare technology specialist and also the program manager of the Carin Alliance that is trying to get more data into the hands of patients and building on a multitude of interoperability programs.
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We discuss the early challenges they had that found some Data Privacy Officer pushing back and created an uphill struggle to persuade them and all concerned that this was being done in a secure and privacy centric fashion. Ryan reveals one of the little known facts about customer data governed by the FTC that allows companies to use data in ways the individual might do the consumer harm, but this is acceptable as long as they declare this intention in their user agreement (you know those multi page documents you get every time you sign on and use an application). Moving into the healthcare domain requires a more consistent and patient centered approach that applies the principle of do no harm.
We discuss the use of best practices and how they managed to get multiple parties to participate and buy in to a code of conduct that they developed by taking the best parts of existing legislation in other areas and even countries. Their overriding principle boils down to this:
“at its core, the current code of conduct essentially says, an individual must consent to the use of data and the sharing of their information across systems, and this third party app has to act in my best interest, and that third party app also needs to ensure that any downstream application that uses this data is held to the same standard that the initial app has actually been held to.”
You can find apps and companies that comply with this at MyHealthApplication that has links to all the companies that have signed up and comply with the certification framework for the code of conduct.
How did they achieve this incredible consensus – as Ryan describes it building consensus is hard as Gov Mike Leavitt discovered so he wrote a book on this: Finding allies and building alliances which forms much of the approach they take to creating consensus. Their Incremental point was to highlight the fact that all the participants have a common pain and used this as the anchor point to get buy in.
Its an Identifier not an Identity
Listen in to hear Ryan share details of their new Digital Membership ID card that authenticates individuals and creates an identifier (not an identity), how that trust is created and enforced and the way in which companies compete in this new world (hint – Apps are now competing on their privacy, compliance, and consent) and the key points in creating a Digital ID that includes equitable access, protection of the most vulnerable and solutions and IDs that allow the individual control of data, and the important work of the Vaccine Credential Initiative.
About the Show
For years Dr. Nick van Terheyden aka Dr. Nick, has served as a voice on the impact of new technologies on healthcare, earning a reputation as a leading authority on where the future of medicine is going. Combining powers of observation and real world experience, Dr. Nick has seen many predictions come true and makes the case that innovations in healthcare can be accomplished incrementally, not just by moonshot events. Tune in to hear Dr. Nick: The Incrementalist and his guests discuss what the future of healthcare looks like, how we will get there, and what it will take to improve healthcare for all.
This article was originally published on the Dr. Nick – The Incrementalist blog and is republished here with permission.